National Resources & Support Groups
Patient and Family Resources
The Children’s Heart Foundation
The Children’s Heart Foundation mission is to advance the diagnosis, treatment, and prevention of congenital heart defects by funding the most promising research.
Conquering CHD
Conquering CHD exists to conquer the most common birth defect. We engage, listen, learn and act. We create visibility and empower all impacted by CHD. We accomplish this through awareness, knowledge, community, and research.
Sisters by Heart
Sisters by Heart provides support, education, and empowerment to families affected by Hypoplastic Left Heart Syndrome (HLHS), and other single ventricle (SV) defects, from initial diagnosis to the Fontan and beyond.
Adult Congenital Heart Association
The mission of the Adult Congenital Heart Association is to empower the congenital heart disease community by advancing access to resources and specialized care that improve patient-centered outcomes.
CHD Care Compass
The mission of CHD Care Compass is to empower families with knowledge and tools for the CHD care journey.